We are playing catch up a little bit today...the wifi connection at the Hope Lodge does not allow us onto the blog website, so we can only write updates from the public computers downstairs. Needless to say, it takes more organization and therefore we haven't been as faithful at writing daily updates - sorry!
Here are some photos from our first outing after being discharged from the hospital - picnic in Central Park! Our friend, Alysa, came to NYC to visit for the weekend, so she's in a couple of them.
 |
| Eating lunch on a bench with Alysa |
 |
In the Great Lawn of the park, Smurf's castle behind us!
|
The next doctor's appt is on Wed and we're hoping that Brian's line is pulled that afternoon, but it will be dependent upon his labs (which they expect to be ok). He continues to gain a little bit of strength each day and today his nausea seemed to be better. One thing that Brian has commented on is that he can really tell a difference every few days in his energy level and strength - when he had his autologous transplant 2 years ago it seemed like progress took much longer (or so he feels), so this is very encouraging to him! As we prepared for this transplant we just expected the absolute worst...everyone said how much more difficult an allo is vs. an auto...he is happy to report that this has not been the case thus far for him (knock on wood)!
This week seems to be getting busy, as I'm preparing to leave on Sat. morning, so I'm trying to get things in as much order as I can before leaving (which of course includes a little bit of shopping!). We're both kind of nervous about it, but we know he'll be in good hands:) It's a bittersweet thing...Brian will miss me and of course I'll miss him, but it will be great for me to be back with the kids at our house... and unfortunately I have that thing called work to get back to.
We now have a mailbox here but of course we left the address upstairs in our room...we'll include it on the next blog entry!
No comments:
Post a Comment