Well, here I am again, sitting in a treatment room waiting for some IV chemo...
Lots of things have happened since my last entry, but I was kind of enjoying ignoring them and just getting on with things.
However, for posterity and to bring this blog to a close I will up date the last week or so.
I had my two year post transplant work up last week, blood work, 24 hour urine, bone marrow biopsy (BMB). The bone marrow took at least 45 mins, this was due in part to there being lots of holes in the bone (kind of like Swiss cheese) so it took some time to get a good sample. That should have been a hint, plus a week or so ago I fractured two ribs while twisting awkwardly opening a door!
On Monday last I had a meeting with Dr McGuirk and the first thing he said when he arrived was that we needed to get Kristy on speaker phone... Never a good start! He had the preliminary results of the BMB and there was 70% plasma in the marrow where there should have none. Multiple myeloma causes over production of plasma cells which takes over causing all kinds of problems one being bone weakness.
So the plan is to go on an aggressive chemotherapy protocol for 6 months and see if we can get control again. The drugs will be outpatient which is good but will make me feel crappy which is bad. I've had Cytoxin before and am not a fan. Carfilzomib is the new generation of Velcade and have not had the pleasure. Dexamethasone should help with my chore list...
So as things progress with my treatment I may not post again, never say never but I'm not sure why I'm doing this anymore. The first time round on a roller coaster is fun with all the ups and downs but the second or third doesn't get any more interesting, so I might just spare you the blow by blow...
