2020...well as a kid I thought by now we'd at least all have flying machines! But instead we all have phones, every man woman and child (at all times 🙄).
Anyhoo, I hope this new decade finds everyone well, full of New Years resolutions that mostly will soon be shelved until next January. I'm having a go, I thought, what am I waiting for I need to start working out. If nothing else, just to compete with the kids push-up competitions. I may have left it too late, Sophie can currently do twice as many as me.
So a brief update on my cancer journey/battle/adventure as there is not much happening at the moment which is nice.
The second VRD PACE (chemo in the hospital) went well, it's amazing how 'easy' it is without a 'man cold' 😉. I managed to walk the halls every day and left hospital when I planned to.
Now I have chemo once a week, it consists of Dexamethesone, Velcade and Cytoxan. I will stay on this as a bridge until it stops working. I didn't qualify for the trial drug I tested for in hospital because my renal function wasn't good enough.
So the hope is that the FDA approve some better treatment options soon, before this bridging chemo treatment stops working. The big new treatments are targeting BCMA which seems to be a great option at the moment and pretty effective. Basically it's immunotherapy in some form, top of my list would be a CAR T cell treatment but there are also others that are being fast tracked to FDA approval given their efficacy in clinical trial.
So until then I try to workout and beat my kids at push-ups, I try to enjoy every day with family and friends. I also enjoy the wonderful excitement of the Chiefs football team going to the Super Bowl!
#GoChiefs
PS. I had Kristy check my grammar before posting this and she said it was very apparent I had got steroids yesterday...so I guess I'm a little extra chatty. Please take this into account when reading.
